“On paper, you’re the picture of perfect health.” Those words were said to me yesterday by my new Primary Care Physician as he was looking at the results of last year’s physical. (OK, so they weren’t really “on paper,” they were on his computer…but we know what he meant.) I am such a case of “you don’t look sick” that even my test results are conspiring to make me less believable.
I’m kidding. I’m actually really glad my lab results are generally normal. I have fibro, I have reflux esophagitis, I don’t exercise or eat right. Things could easily go sideways at any time. As of last year, my cholesterol was at the high end of what’s normal, and my good cholesterol was, well, good. It didn’t worry the doctors. I hope this year’s physical will be similar. (I’m due for one in September.)
I have hope for this new Primary Care doc. He doesn’t seem daunted by my impressive list of medications and conditions. He is willing to work with me as long as it doesn’t involve making medical decisions that should be made by specialists, which is perfectly reasonable. He listened to what I had to say yesterday, and when he spoke, he asked questions and said things that made sense. He was friendly and kind, and was even wearing a lavender shirt and a white tie with purple and lavender stripes (purple is my favorite color, so this made me happy).
He wants me to try to work with my other doctors to cut down on my meds, which I hope I can do. There are a few I’m taking that I’m not sure are helping, so decreasing the dosages with the help of whatever specialist prescribed them is a good idea.
He’s ordered a bone density test and a gastric emptying study for me. (I won’t go into why bone density is a worry for me at 37 years old, but it is.) My last gastric emptying study – the one that determined I had idiopathic gastroparesis – was 9 years ago, so we want to see how my digestion is doing these days. I had been on Reglan (a motility aid that helped considerably with my gastroparesis) for years, until a doctor took me off it last year due to the risk of tardive dyskinesia. (Scary stuff!) I did not get noticeably worse when I went off it, so that was that.
I told him about the work I’m doing to try to get better – the weekly psychotherapy sessions, weekly Fibromyalgia Life Coach sessions, trying to develop more of a social life because it makes me happier. That’s all been working out well for me, though I hit bumps in the road when life interferes (throwing horrible eye allergies at me, or giving me a mystery illness with a slight fever like I have now, or what have you). (Side note: the eyes have been much better lately! Hooray!)
Here’s the killer, though: he wants me to try making drastic dietary changes. Ummm…drastic? Yikes! I love food. My diet is already restricted significantly because I cannot eat wheat or soy or raw vegetables without getting really sick. I will give up coffee and chocolate over my dead body. Same with dairy products, though I can try to decrease them somewhat, I think – if I can think of other things to eat!
The main thing he suggested to me was an anti-inflammatory diet. However, in my Internet research, it’s become apparent that a lot of sites (and doctors) disagree on what that means. To that end, I’ve reserved a few books from the library on what one should or should not eat with chronic pain, all of which have recipes included. I figure I’ll cherry pick what I can from those.
I’m of the opinion that drastic dietary changes would be a bad idea for me unless I were absolutely desperate to try something new. Food brings me joy. When I don’t eat food I like, and/or when I don’t eat enough, I feel deprived – something I tend to think that I feel often enough as a fibro patient. I don’t want more deprivation.
However, I’ve known for a while that I need to cut down on sugar. A lot. I have a terrible sweet tooth, and although my sweet-eating is limited to what doesn’t contain wheat or soy, that still leaves a lot of delicious things. (Gluten-free baked goods from my favorite farmer’s market vendor…Ice cream…Fancy chocolate. Mmmm.) Cutting out sugar completely would make me a totally miserable human being, but cutting down on it would probably decrease my pain levels. I am sensitive enough to sugar that I can actually feel my pain get worse after eating something particularly sugar-laden. Not a good feeling (except for my taste buds!).
That’s all I’ve got to say about the Primary Care Physician visit for now.
On another note, Fibro Coach suggested I try melatonin for sleep. For a very long time, I’ve been on Trazodone as a sleep aid, and lately my sleep hasn’t been great even with that. I tried the melatonin. It worked too well! I found myself sleeping straight through the night for 10-12 hours. That would be fine if I had nothing to do, but I do actually need to get out and do things sometimes, so I’ve cut it down to half a pill. I’ve also tried reducing the Trazodone (with a doctor’s help). Not sure how that will work out. Wish me luck!
I have big news that must wait until another post. Please stay tuned.